Palliative care is any form of medical care or treatment that concentrates on reducing the severity of disease symptoms. The goal is to prevent and relieve suffering and to improve quality of life for people facing serious, complex illness. This support encompasses aspects such as respite care, symptom management and bereavement support and may extend over a period of time. An assessment of medical need and a care plan can lead to support provided to the child and family so both can experience a better quality of life. Many hospitals have palliative care centers.
- Ultragenyx today announced a Phase 1/2 study of UX003 for MPS VII
- Synageva BioPharma joins the International MPS Network in support of MPS Awareness Day 2013
- Icahn School of Medicine at Mount Sinai and Bene Pharmachem Gmbh To Collaborate On Clinical Studies for Mucopolysaccharidoses
- LYSOGENE received US orphan drug designation for SAF-301 for treatment of MPS III A