The National MPS Society has been asked to share this information with our families who have a child with MPS. The Mayo Clinic Biochemical Genetics Laboratory in Rochester, MN is developing newborn screening and biomarker for lysosomal diseases, including all the MPS diseases. They are asking for a blood sample collected on newborn filer paper for this testing. Details about this testing and contact information is available in their recruitment flyer.
- Transitions: Managing Your Own Healthcare – What Every Teen with an LSD Needs to Know”
- FDA Advisory Committee votes “Yes” to Vimizim for MPS IVA
- Caregiving Webinar Thursday, November 21 from 2-3:30 PM EST
- Family Support Programs