The National MPS Society has been asked to share this information with our families who have a child with MPS. The Mayo Clinic Biochemical Genetics Laboratory in Rochester, MN is developing newborn screening and biomarker for lysosomal diseases, including all the MPS diseases. They are asking for a blood sample collected on newborn filer paper for this testing. Details about this testing and contact information is available in their recruitment flyer.
- Ultragenyx today announced a Phase 1/2 study of UX003 for MPS VII
- Synageva BioPharma joins the International MPS Network in support of MPS Awareness Day 2013
- Icahn School of Medicine at Mount Sinai and Bene Pharmachem Gmbh To Collaborate On Clinical Studies for Mucopolysaccharidoses
- LYSOGENE received US orphan drug designation for SAF-301 for treatment of MPS III A