Family Support Programs include the Family Assistance Program, Extraordinary Experiences, Continuing Education Scholarship Program, Regional Social Gatherings, dues waived program, and Medical Travel Assistance Program. Applications for these programs are below.
Family Assistance Program Application
Grants for special equipment or medical aids may be requested up to a maximum of $3,000 for parents of an individual with MPS or related diseases or an adult with MPS or related diseases per 12-month period, dependent on available funds and the Committee’s decision.
Extraordinary Experiences
A program designed especially for individuals affected with MPS and Related Diseases who are 13 years of age and older. Grants of up to $1000 are available to help individuals have their very own Extraordinary Experience, such as summer camps, school supported trips, educational conferences, etc. Please download the application and guidelines, and contact laurie@mpssociety.org for further details.
Continuing Education Scholarship Program
2012 Continuing Education Scholarship Applications are now closed! Announcement for the 2012 recipients will be on or before May 15th, 2012. To read about our 2011 Recipients please click here.
Regional Social Events
We encourage families to arrange social get-togethers for other families in their region. The Society offers grants to help assist with funding of your event.
Regional Event Grant Application and Guidelines
Membership and Dues Waived Program
Dues can be waived for families experiencing financial difficulties. Complimentary membership is also offered to families who have a recent diagnosis. Please contact laurie@mpssociety.org for more information.
Medical Travel Assistance Program
Families may need to travel long distances to consult with medical professional who are knowledgeable about MPS and related diseases. The Medical Travel Assistance Program (MTAP) helps fund out of town travel costs for such non-recurring medical appointments. MTAP may reimburse up to $500 per affected individual per 12 month period in transportation costs for member families traveling to a medical appointment more than 200 miles from their home.
Emergency Relief Program
The Emergency Relief Program (ERP) was created to help qualified member families facing a financial crisis. This assistance program provides relief to members facing a situation that threatens their immediate health and safety, or that causes a terrible hardship. It is intended to provide short term financial assistance in a crisis situation, and is not intended to address long term financial challenges.
