2012 Family Conference
The 26th Annual National MPS Society Family Conference will be held July 26-28, 2012 in Boston, MA. Click here for details and registration materials.
The Boston Park Plaza Hotel & Towers is located in the heart of historic Back Bay and is one of Boston’s most recognized and renowned landmarks. Rich in history, The Boston Park Plaza has distinguished itself with classic elegance and personalized service that continues to attract travelers from all over the world. The hotel is located only three miles from Logan International Airport and only 200 yards from the nation’s first public parks, Boston Common and the Public Garden is easily accessible to shopping along world-renowned Newbury Street, Faneuil Hall Marketplace, the theatre and financial districts and more historic landmarks.
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25th Annual National MPS Society Family Conference
More than 300 people gathered July 28-30, 2011 in St. Louis, MO to celebrate our 25th annual conference during what was one of the hottest Julys on record. Read all about it!
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Presentations from the 24th Annual Family Conference in Knott’s Berry Farms, California
Click on the title of the presentation below to view
Austin Noll Legislative Committee Presentation
Austin Noll, MBA
MPS IV Clinical Trial: A phase I/II, multi-center, open-label, dose-escalation study to evaluate the safety, tolerability and efficacy of
BMN 110 in subjects with MPS IV A
Celeste Decker, MD
Developing a Novel Treatment for Sanfilippo A Syndrome
Patrick Haslett, MD
Overview of the Lysosomal Disease Network: A Rare Disease Clinical Research Newtork
Elsa G. Shapiro, PhD, ABPP, LP
Longitudinal Studies of Brain Structure and Function in MPS Disorders: Lysosomal Disease Network
Elsa G. Shapiro, PhD, ABPP, LP
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2009 Family Conference – Disney World
To celebrate its 35th anniversary, the National MPS Society hosted its 2009 family conference in Disney World at Disney’s Coronado Springs Resort, December 17-20, 2009. Click here for a recap of the Conference.
