Kris Klenke's Personal Statement Reasons for running for the Board: I was asked by the Board of Directors to be the coordinator of conference registrations for the 1999 Disney conference. After helping with the conference, I realized I would like to be able to participate at a higher level which would enable me to be able to do more for the membership of the Society, I ran for a board of director position and was elected in 2000. Committees and board responsibilities: I am the current Vice President and Chair of the Family Support Committee. I served as Secretary from 2003-2006. I have served on the annual conference committee for the last seven years, and was chair of the 2003 St. Louis conference. Society fundraising activities: I have organized Klenke Bowl every 12-18 months since 1998, with the help of family and friends, I also hosted a walk/run event in 2000, crazy hair and hat day at the kids schools in 2004, 2006 and 2007, and a local family gathering in 2006. All of these events have helped raise awareness of MPS and related disease in our community as well as over $65,000 for the Society. Personal interests/hobbies: I enjoy photography, scrapbooking, swimming and bowling. Family: Married to Brian, mom to Kraig who is 15 years old and was diagnosed with MPS II at 3 years old and Chelsey who is 14 years old. Education and Profession: I am a full time mom and work part-time as Deputy Assessor for our local township and also for National Education Service as a Proctor. These two jobs offer me a lot of flexibility which allows me to be able to be there for all of Kraig's medical and educational needs. I graduated from Patricia Stevens College with a business degree. My plans to return to college have been put on hold since Kraig's diagnosis. Community and volunteer activities: Wish Granter and office volunteer for Make-A-Wish, volunteer for the Andrew Clarke Hall Foundation and volunteer at Kraig and Chelsey's schools. Personal impact of being on the board, goals you hope to achieve: It is a privilege and pleasure to be able to work for the membership of the Society. It has been exciting to see the growth of legislative activities, fund-raising activities and family support programs. I would like to see the family support programs expand and I hope we can enhance them so that the Society can offer more support for individuals and families. I would also like to see more research and treatment options for all MPS and related diseases.