Kym Wigglesworth's Personal Statement Reasons for running for the Board I was interested in working on the enhancement and expansion of the Society's legislative advocacy and research efforts. Committees and board responsibilities Legislative Committee co-chair 2007 Washington DC conference co-chair Development Director Search Committee Society fundraising activities Attended the 4th Annual Mackenzie's 5K Run/Walk for MPS in 2006. Run Coordinator â€" RTP for Maddy in 2005 (raised over $15,000). Personal interests, hobbies Reading, Politics, Dog Training Family I live in Apex, NC with my daughter, Maddy (MPS1H) and husband Craig. Education and Profession I have a B.S. in Journalism from the University of Florida. In the past I’ve worked as a software trainer and teacher. I am currently working in Human Resources for a clinical trials staffing service. Community and volunteer activities I volunteer at Maddy’s school and for our community swim team. I also lend support, when needed, to MPS families at Duke during transplant. Personal impact of being on the board, goals you hope to achieve I have found serving on the BOD to be a challenging and rewarding experience. It's a pleasure to work with such a committed group of individuals who and yet continue to dedicate themselves to this organization. A few of my goals as a BOD member include: Continuing to develop our collaborations with Congress, the NIH, FDA and Department of Education on issues of importance to our membership. Focus on specific legislative issues such as: newborn screening, stem cell research, Medicaid/Medicare and private insurance coverage. Further collaboration with foundations and other rare disease groups to expand research efforts. Expansion of awareness efforts.