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Family Support > Ask the Parents > MPS I

MPS I: Hurler, Hurler-Scheie, and Scheie Syndrome Family Contacts

Name Child's Name Birthdate Syndrome Family Website/Comments

Bill and Trisha Athy

Aaron

10/27/2001

MPS I

Aaron's website

Jackie Beauregard Jeffrey 5/12/1991-5/3/1991 MPS I
Mike and Traci Bosch Daniel 10/17/2004 MPS I

Bone Marrow Transplant 6/10/2005

Daniel's Website

Laura and Tom Burke

Edie

7/27/1998-5/3/08

MPS I


Jennifer Deskins Tyler 1/13/2004-11/1/2005 MPS I

Bone Marrow Transplant 6/8/2005

Tyler's Website

Al and Jean Ducham

Eddie

11/13/1986

MPS I

Bone Marrow Transplant 6/8/1989

Rick and Francie Espino Marcus 3/3/1993 MPS I Bone Marrow Transplant
10/21/1994 &
7/7/1995
James and Jennifer Garrard Nathan 7/10/2002 MPS I

Stem Cell Transplant 11/6/2003

Nathan's Website

Steve and Amy Holland Spencer, Laynie and Maddie

Spencer: 12/19/1989-1/26/08

Laynie: 6/1/1993

Maddie: 6/26/1991

MPS I *
Steve and Melanie Irish Jacob 7/29/2000 MPS I

Jacob's Website

Cord Blood Transplant 5/22/2000

Robb and Trisha Jensen Sydnee 3/25/1999 MPS I

Bone Marrow Transplant 9/15/2000
Sydnee's Website

Darin and Gloria Klaesges Tiffany 8/4/1996 MPS I Bone Marrow Transplant 1997
Rob and Laura LaBeth Sean and Shaye

Sean: 5/18/1999

Shaye: 6/8/2004

MPS I Learn more at our family website!
Julie Leighton Christina Leighton 11/2/1988-11/6/2002 MPS I* Christina's Website
Tracy Lyon

Ryan and
Jennifer

Ryan: 8/17/1990-10/3/1993
Jennifer: 8/28/1986-12/18/1998

MPS I
Angela Mitchell Dylan 11/12/94-12/21/04 MPS I
Darrell and Stacey Pevler Teagan 9/6/2004 MPS I

Bone Marrow Transplant 7/2005

Teagan's Website

Jennifer and Jim Restemayer Allison 5/5/2001 MPS I Allison's Website
Sherri Richbourg Jenna 4/24/1997 MPS I Jenna's Website
Neil Valentine Julia Mae Valentine 5/7/2003 MPS I

Bone Marrow Transplant

www.carepages.com page name: Julia Valentine

Ray and Kelly Waddell Caleb 12/6/2000 MPS I Stem Cell Transplant
Caleb's Website
Kim and Craig Wigglesworth Madison 4/6/1998 MPS I Cord Blood Transplant 8/25/99;
Madison's Website
Sheila Zimmer Derek 9/21/1983 MPS I *
PS II: Hunter Syndrome Family Contacts


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