Family Conference News
Family Conference 2008In lieu of hosting a conference in 2008, the National MPS Society will be providing stipends for qualified US member families and affected adults to attend the 10th International Symposium on MPS and Related Diseases June 26-29, 2008 in Vancouver Canada. Now Availble: Registration Letter, Stipend Form, Registration Form. Members of the Society who do not qualify for the stipend are welcome to attend the Annual General Membership and Awards Banquet on Friday, June 27.
22nd Annual National MPS Society Family Conference: March 4-6, 2007, Washington, DCThe 22nd annual Family Conference focused on research and federal advocacy, with talks from congressional staffers, NIH and FDA representatives. Dr. Kelley Moremen presented a fascinating overview of lysosomal storage diseases. Families met with their legislators after a brunch on Capitol Hill. Following the family conference, an NIH scientific conference was held. More... Inaugural Celebrating Your Child's Life Experience (CYCLE) ConferenceThe National MPS Society hosted the Inaugural Celebrating Your Child's Life Experience (CYCLE) conference for immediate members of those families whose child(ren) have passed away. This special conference was held Sunday, July 30, 2006 in Covington, KY. More... The 21st Annual MPS Society Family ConferenceThe 2006 conference was another successful event, bringing families from all the US to Covington, Kentucky in July 2006. Anne and Tom Gniazdowski, conference chairpersons, worked with many of our Ohio families to plan an exciting and fun conference. More...
The 20th Annual MPS Society Family ConferenceThe 20th Annual MPS Society Family Conference was held November 10-13, 2005 at the Chaparral Suites Resort in Scottsdale, AZ. More...
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