MPS Events: Please check here to see if there is an event happening in your area. If you are hosting an event, please make sure you let the office know so they can post your event details. Regional Family Events: Ohio area MPS Gathering 2008--- Hawaiian Hullabaloo- July 19, 2008, Hilliard Ohio- contact Rachel Wojnarowski 614.529.3775 for more information or click here for more details. Illinois area MPS Family Picnic 2008August 9, 2008, Troy IL - contact Kris Klenke 618.888.2204 or kris@mpssociety.org for more information or click here for more details.
Medical Meetings:Board of Directors Meeting:The next Board Meeting of the Society will be held October 24-25 in Durham, North Carolina. Please contact the office for more information Family Fundraisers
Southern Living at Home Fundraising OpportunityWhat a great idea to buy some beautiful items for your home or as gifts and to support the National MPS Society at the same time. Lauren Jacobs, aunt to Davis (MPS II) is a Southern Living at Home consultant and is offering to donate her commission (which is 25% of the retail sold at the show) from online shows to the Society. Click here to read the full details and see how you can participate.
Read for AwarenessAre you interested in supporting the National MPS Society and expanding your horizons at the same time? If so, please visit www.readforawareness.com. Once you are on the website, click to enter the Bookstore and then on the MPS VI link under ESHOWS (listed on the top right hand side of the main page). The Society will receive a donation totaling 25% of each order placed from that link. The books are through Usborne Books, a line of educational enrichment books, in business since 1989. Please contact Margo Anderson at obnurse15@hotmail.com if you have any questions. Margo is mom to 10 year old Nathan who has MPS VI. _______________________________________________________Other MPS related conferences and conference summaries
10th International Symposium on MPS and Related DiseasesConquering MPS Learn. Live. CureVancouver, British Columbia, Canada June 26-29, 2008. www.mpssymposium2008.com
Global Organisation for Lysosomal DiseasesGOLD, the Global Organisation for Lysosomal Diseases, is an international collaboration of scientific and medical associations, patient groups, and commercial organisations dedicated to improving the lives of all patients with a lysosomal disease. More...
Germany Meeting 2004 Summary The 8th International Symposium on Mucopolysaccharide and Related Diseases was held June 10-14, 2004 in Mainz, Germany. Attending the conference were scientists, parents, children and adults affected with MPS, family and friends from 29 countries and five continents. Attending from the National MPS Society were: Steve Holland, Ernie and Debbie Dummann, Larry Kirch, and Barbara Wedehase. Below are excerpts from the attendees and reviews of several presentations. More...
NIH Conference Review 2002The conference, "The Mucopolysaccharidoses: Therapeutic Strategies for the Central Nervous System was held September 24-25, 2002 in Bethesda, MD. This conference was the result of almost 2 years of planning between the NIH (National Institutes of Health) and The National MPS Society. We are very grateful to the commitment and financial support of the NIH, without whom this meeting would not have been a reality. More...
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