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Legislative Update #33 - October 2005 (Oct 1, 2005)
Legislative Update #33 - October 2005
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Legislative Update #31 April 2005 (Apr 1, 2005)
Legislative Update # 31
April 2005
Sissi Langford Chair Committee on Federal Legislation
Senate Resolution for National MPS Awareness Day Passes!!!!
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Legislative Update #30 January 2005 (Jan 1, 2005)
In January of 2003 the Legislative Committee developed a policy paper outlining the need to address children with degenerative disorders such as MPS and ML in public schools under the IDEA (Individuals with Disabilities Act) Reauthorization. Congress requ
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Legislative Update #29 November 2004 (Nov 1, 2004)
As the 108th Congress comes to an end the National MPS Society bids a farewell to two of our strongest Hill Supporters. We wish Senator Fritz Hollings (D-SC) the best as he comes home to South Carolina to retire. His staff in DC has always provided us wit
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Legislative Update #28 July 2004 (Jul 1, 2004)
"Optimism is the faith that leads to achievements. Nothing can be done without hope or confidence." - Helen Keller
This photo of Brittany Sheaffer meeting President George Bush serves as a reminder that we do have the right to hope for a brighter futu
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Legislative Update #27 April 2004 (Apr 1, 2004)
When I first traveled to Washington, DC in February of 2000 to talk about Joe, Maggie and MPS I really had forgotten my 9th grade civics lecture. By this point, I had replaced all my usable memory with a new vocabulary including words and terms like DNA
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Legislative Update #26 January 2004 (Jan 1, 2004)
"There are two primary choices in life: to accept conditions as they exist, or accept the responsibility for changing them." - Denis Waitley, Author of "The Psychology of Winning"
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Legislative Update #25 October 2003 (Oct 1, 2003)
Les Sheaffer Retiring as Legislative Committee Chairman-
This will my last Legislative Update in Courage, I will be stepping down as Chairman of the Legislative Committee on December 31st 2003, the end of 2nd my term on the Board of Directors. Sissi La
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Legislative Update #24 June 2003 (Jun 1, 2003)
It has been a very busy and productive couple of months since our last update and there is a great deal to cover. We have news of our May meetings in DC and at NIH, success in our efforts to improve IDEA, the status of endorsed legislation, 2 new Legislat
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Legislative Update #23 April 2003 (Apr 1, 2003)
We extend our deepest thanks and appreciation to all the men and women serving in the United States armed forces for their courage and sacrifice on our behalf.
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