Legislative Documents

MPS Advocacy on Capitol Hill and the National Institutes of Health (Oct 1, 2003)
Sissi Langford, Eric Merrell and I again visited Washington, DC to advocate for research, education, regulatory and quality of life issues important to the MPS and ML community. In meetings with 9 House offices and 11 Senate offices we discussed FDA polic Read More

National Institutes of Health Meeting and Research Advocacy Update (May 19, 2003)
Legislative Committee Co-Chair, Sissi Langford and I visited the NIH Neuroscience Center in Bethesda, MD and conducted a joint meeting with officers of the National Institute of Neurological Disorders and Stroke (NINDS), National Institute of Diabetes, Di Read More

MPS Advocacy on Capitol Hill - January 15th - January 17th 2003 (Jan 17, 2003)
FDA and NIH News - MPS Society advocacy efforts continue in 2003, the morning of January 15th, the MPS Society legislative committee joined executive director Barbra Wedehase, President Steve Holland, board member Amy Holland and other members in atten Read More

MPS Advocacy on Capitol Hill - September 24th, 2002 (Sep 24, 2002)
Society Board Members Join Legislative Committee for Meetings in U.S. Senate Read More

Capitol Hill and National Institutes of Health: June 12th 2002 (Jun 12, 2002)
MPS Advocacy in Washington DC and National Institutes of Health, June 12th 2002- Read More

Capitol Hill and National Institutes of Health: March 7th to 8th 2002 (Mar 8, 2002)
MPS Advocacy News from Washington DC, 7th and 8th March 2002 Read More

Capitol Hill and National Institutes of Health: July 30th to Aug 1st 2001 (Aug 1, 2001)
I visited Washington DC again this summer in the interest of continuing our efforts to build cooperative relationships with members of Congress and the National Institutes of Health. I was joined on this trip by MPS Society legislative committee member an Read More

Capitol Hill and National Institutes of Health: July 20th to 21st 2000 (Jul 21, 2001)
Spotlighting MPS Children and Families in Washington D.C. and Working for Solutions Read More

Capitol Hill and National Institutes of Health: Feb 14th to Feb 16th 2001 (Feb 16, 2001)
Spotlighting MPS Children and Families in Washington D.C. and Working for Solutions Read More