Library > Fact Sheets
Air Travel and Letter of Support
Feb 2, 2010
Cardiac Problems
Nov 1, 2005
Caregiver Support
Nov 1, 2006
Carpal Tunnel Syndrome and Trigger Digits
Jul 30, 2009
Communicating Hydrocephalus
Jan 1, 2003
Conservatorship
Sep 18, 2009
CPAP and BiPAP
Jun 7, 2008
Emotional Responses to Diagnosis
Feb 1, 2006
End of Life Care Resources
Nov 1, 2006
Family Coping Strategies
Mar 1, 2004
General Research
Nov 7, 2008
Grief Support Resources
Nov 1, 2006
Melatonin
Jun 7, 2008
ML II Transplants (HSCT)
Jun 9, 2005
MPS Transplants (HSCT)
Aug 21, 2006
Newborn Screening
Sep 1, 2004
Otitis Media
Oct 11, 2007
Orthopedic Problems in Children with MPS
Jul 30, 2009
Pain Management
Sep 18, 2009
Palliative Care
Aug 22, 2006
Pamidronate
Jan 1, 2006
Physical Therapy - For Parents
Dec 14, 2006
Physical Therapy - For Professionals
Dec 14, 2006
Port-a-Cath
Aug 21, 2006
Prenatal and Preimplantation Diagnosis
Jan 1, 2005
Seizures
Jul 30, 2009
Spica Cast Care
Jul 30, 2009
Stem Cell Transplant Questions
Mar 23, 2007
Tracheostomy
Sep 14, 2007
Tube Feeding
Mar 13, 2007
Use of Medication
Sep 18, 2009
Writing a Letter of Support
Nov 1, 2005
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