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MPS & Related Diseases > Order Booklets

Order Booklets

These booklets are designed to be a day to day living guide for the MPS and related disease family and provide much insight as to the natural progression of the diseases in a positive and helpful manner. The booklets are also designed to be a tool for the professional who will encounter MPS children and their families.

Cost for each booklet is $1.00 for an order up to 25 copies; prices are lower for volume orders. Shipping and handling charges also apply. For more details and to order these booklets, download and print our order form below. Mail this order form to the address on the form with payment.

Available Booklets


  • MPS I
  • MPS II
  • MPS III
  • MPS IV
  • MPS VI
  • MPS VII
  • ML II/ML III
    Other Booklets
  • Is your child having an Anesthetic?
  • Management of MPS and ML
  • Education Strategies and Resources
  • Daily Living with MPS and Related Diseases
  • Ethan's Feeling Switch
Note: These booklets are not intended to replace medical advice or care. The contents of, and opinions expressed in, these booklets do not necessarily reflect the views of the National MPS Society or its membership. All families of affected children should seek further information from their doctor or from a Genetic Counselor.

Price List


1-25 Copies $1.00 per booklet
26-100 Copies $.95 per booklet
101-500 Copies $.90 per booklet
501 & up $.85 per booklet
Ethan's Feeling Switch $5.00 per copy

Please add $2.00 for shipping and handling for orders of up to 5 books; add $4.00 for orders of 5 to 10 books and add $8.00 for orders of 10 to 25 books. For larger orders, please contact our office for shipping charges.

Order Form


To download the MPS Disease Booklet order form, click here. This form is in Adobe Acrobat PDF format. Please make sure you areusing the latest version of Adobe Acrobat Reader. To download AdobeAcrobat Reader, please click on the link below.


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